Wednesday, December 2, 2015

Crohn's Remission

I have waited a long time to write this post. 

A year to be exact. 

There were some dark times as I went through my flare but it started years before even being diagnosed. 

I had been cautiously optimistic after my last remicade appointment. My wonderful GI doc had doubled my usual dose to the highest maximum allowed to try and kick me into remission. Within a couple of days, my lingering symptoms were gone. 

At the same time I received two more iron infusions as my levels had plummeted once again. Then it turned to a waiting game. 

I kept waiting for the return of symptoms but after a month or so started to think about it less. 

I raced when feeling less than ideal (usually my own fault, because, wine) - and was setting PRs. 

Three to be exact in the 5K, 10K and 5 mile and started to gain confidence. 

I went to my hematologist for blood work last week and when we got the lab results we were equally floored.

I started at an iron level of 2, peaked at 14 before it slumped again and just came back at a 181 - off the charts. 

I spent this morning hooked up to my favorite IV and based on symptoms (aka basically NONE) for all intent and purposes I am in remission (we have to do a colonoscopy to check how the ulcers are still). 

Living that Remicade life.
This is as good as it gets folks. There is no cure but hopefully I remain flare free for a very long time. 

Even as I started feeling better in the latter part of this year I kept waiting for the other shoe to drop and the flare to return (case and point I refused to use my vacation due to wanting to have a bank in case I got real sick again. I now have a month accrued...and am taking two weeks of starting next weekend thank you very much). 

But now, my mentality has done a total 180. Most days I feel amazing, or you know, normal.  But to feel normal and healthy IS amazing. I still get some issues every now and again but I can push through more as an "inconvenience" versus before being knocked out and sidelined. 

I am thankful. I am so so so very thankful. For those who have supported me through the darkest time, as well as for modern medicine. There may not be a cure but the advances made thus far have gotten me to this point and allowed me to regain my life.

I am thankful for a team of doctors that would not let me accept that feeling 75% as okay. I am thankful that they never once tried to deter me from leading an active lifestyle. I am thankful for the blogging community that has connected me with others in the same position and helped me see that there was a light at the end of the tunnel. 

I've never felt so blessed. 


  1. This puts the biggest smile on my face. There aren't many words to say, other than I am so Thankful that you are in remission. So, happy, so thankful. This is the perfect way to bring the year to a close! So many congratulations. xoxoxo

    1. THANK YOU! I am seriously thankful for people like you that have shown me life will go on and to hang in there. And, I can't wait for NOLA!

  2. So happy to read this, Gianna. And I'm especially happy to hear that you're finally feeling comfortable enough to maybe take a vacation!!

  3. Oh my goodness!! It sounds like you have been through a lot! Thank you for sharing and I am glad you are okay!! <3 <3 <3 -

  4. Such happy news!!! So happy for you!!! Way to kick Chron's in the butt!!!

  5. This is such great news! Congratulations! Several of my family members have suffered with Crohn's as well, and I've seen how tough it can be.

  6. Congratulations!!! I am so happy for you :)