So yesterday I had the most fun day off from work ever.
And be warned may be TMI in here, but TMI is my life these
days :)
Tax fun in the morning which took entirely too long for a
simple return.
Followed by needing to prep for another procedure (flex
sigmoidoscopy) and then the procedure itself (similar to a colonoscopy but less
invasive and no sedation).
And not eating until 5pm which was definitely the hardest
part for me! Don't deny me food. Ever.
I had been waiting for my doctor to return from vacation the
past couple of weeks to finally get this done as things have progressively
gotten worse.
The fun part of the procedure was that I was awake this time
and got to watch the camera output. The former pre-med student in me found it
interesting and you know something to focus on instead of what was going on.
Basically things are now labeled “severe” as a result of
what he saw.
And my doctor is yet to distinguish if it is Crohn’s or
Ulcerative Colitis. My colonoscopy had him 90% at Crohn’s but based on
yesterday more symptomatic of UC. The gist of it all is
that treatment is not working and also he said based on seeing this (he didn’t
do my initial colonoscopy he is going on another doctors findings) there is no
way in hell that Asacol would have put me into remission.
Things have managed to go from bad to worse in the meantime while the anti inflammatory meds are not working.
So as of now I am on prednisone – I wanted to avoid steroids
(because, vanity and knowing some results can be unpleasant) but I will really
do anything at this point.
I will be going back to him next week with hopeful improvement.
But if things don’t start to get better soon, he wants to discuss going on
remicade (IV infusions every 8 weeks or so) which again not thrilled about but
it is what it is.
I am on more than 5 months of this flare and kind of want my
life to get back to some sort of normalcy. I am no longer woe is me but it does
kind of suck to feel shitty most of the time.
So here’s hoping that I don’t get a puffy face and acne, but
that my gut does start to heal itself and stop bleeding. And not worrying about
where every bathroom in NYC is located.
